Lived Experience Leadership
“Persons with lived experience of recovery need to occupy senior leadership roles impacting social policy, system management, planning, education, program development, and evaluation.”
Byrne, L., Stratford, A., & Davidson, L. (2018). The global need for lived experience leadership
Engagement and Participation
“Effective engagement and participation is about shared control and decision-making within a partnership, where all parties are committed to that sharing.”
The National Mental Health Commission
Co-design and Co-production
“Co-production includes all phases of work from co-planning, co-designing, co-delivering through to co-evaluating.”
Dr Cath Roper, Consumer Academic, of Centre for Psychiatric Nursing, University of Melbourne
Lived Experience Workforce
“The Lived Experience workforce is not limited to recovery peer support work, it can include management, advocacy; representation; consultancy. advisory work; health promotion; to education; training; supervision; auditing and research.”
National Mental Health Consumer and Carer Forum
Lived Experience Research
“Conducting research that actively involves people with lived experience in the process moves research from being done for people with health conditions to being done with or by these groups.”
Dr Michelle Banfield, ANU Lived Experience Research Unit
How to Use the Library
Enter the Library through the portal and find lists of resources. These will linclude full text articles, websites, videos and podcasts and some resources that can only be accessed through institutions but still include summaries and abstracts.
Acknowledgement of Country
The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.
Definition of Aboriginal and Torres Strait Islander Lived Experience
“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.
“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre
We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.
Recognition of Lived Experience
We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.
