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Lived Experience Research

— Involvement of Children and Young People in Research

Viksveen, P., Cardenas, N. E., Ibenfeldt, M., Meldahl, L. G., Krijger, L., Game, J. R., Andvik, M. M., Cuddeford, O., Duerto, S., Mustafa, M., & Tong, M. 
Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project. 
Health Expectations
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Introduction: In spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adolescents in mental health research, to describe the collaborative relationship between researchers and coresearchers, including the values that underpin their collaboration.

Randall, R. K. 
I want to do something positive with my experiences: The Youth Involvement in Mental Health Research Project. 
A thesis submitted for the degree of Doctor of Philosophy at The Australian National University
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Consumer and community involvement in research and health services is an increasingly well recognised area of research methodology and practice, yet one which is not well documented in the published literature. When applied specifically to youth mental health research this absence of documentation is particularly pronounced. In the instances where it has been directly examined, it has typically been from the point of view of researchers, not young people.

Faithfull, S., Brophy, L., Pennell, K., & Simmons, M. B. 
Barriers and enablers to meaningful youth participation in mental health research: qualitative interviews with youth mental health researchers. 
Journal of Mental Health
28(1), 56–63. 
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Background: Involving young people in co-designing and conducting youth mental health research is essential to ensure research is relevant and responsive to the needs of young people. Despite this, many barriers exist to meaningful involvement.

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Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

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We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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