Accessibility Tools

Engagement and Participation

— Discussion and Analysis

Ideas of and issues in engagement and participation including overcoming barriers.

Scholz, B., Bocking, J., & Happell, B. 
Breaking through the glass ceiling: consumers in mental health organisations’ hierarchies. 
Issues in Mental Health Nursing
38(5), 374–380. 
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Contemporary mental health policies call for consumers to be engaged in all levels of mental health service planning, implementation, and delivery. Critical approaches to traditional healthcare hierarchies can effectively challenge barriers to better engagement with consumers in mental health organisations.

Pinfold, V., Cotney, J., Hamilton, S., Weeks, C., Corker, E., Evans-Lacko, S., Rose, D., Henderson, C., & Thornicroft, G. 
Improving recruitment to healthcare research studies: clinician judgements explored for opting mental health service users out of the time to change viewpoint survey. 
Journal of Mental Health
28(1), 42–48. 
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Background: There are significant challenges across the research pathway, including participant recruitment. This paper aims to explore the impact of clinician recruitment decision-making on sampling for a national mental health survey.

Pappa, S., Barnett, J., Gomme, S., Iliopoulou, A., Moore, I., Whitaker, M., McGrath, J., & Sie, M. 
Shared and supported decision making in medication in a mental health setting: How far have we come?. 
Community Mental Health Journal
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Personalised care involves shared decision making (SDM) across all levels including choice in medication. However, there are a number of barriers which prevent its effective implementation in routine mental health settings. Therefore, we undertook a study to benchmark current practice across clinical services of a large urban mental health provider.

National Consumer and Carer Forum 
Consumer and carer engagement: Advocacy brief. 
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Over the past two decades, there has been an increase in the inclusion of consumers and families/ carers in decision-making in services, policies and programs. More and more consumers and families/ carers are actively contributing their unique lived experience perspective to develop more responsive and improved quality in services. This aligns with national mental health inquiries and reports, recommending increased consumer and family/ carer participation across all aspects of mental health planning/evaluation, design/conduct of research, peer support services and representative roles.

The National Mental Health Commission 
Sit beside me, not above me: Supporting safe and effective engagement and participation of people with lived experience. 
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Further to the NMHC’s 2017 Consumer and Carer Engagement and Participation Project, this report was commissioned to examine ways to support people with lived experience to effectively and safely participate with services, organisations and systems. In 2018, we worked with David Butt & Associates to consult with key leaders to understand how to support people with lived experience to fulfil appointed or assigned roles, regardless of whether they are a CEO, a peer worker, a committee member or a board member.

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Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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