Accessibility Tools

Engagement and Participation

— Case studies / Research

Documented case studies and research.

Dahlenburg et al. 
Experiences of a peer group for people diagnosed with borderline personality disorder: A qualitative interview study. 
Personality and Mental Health
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There is a notable lack of literature evaluating peer support for people with a diagnosis of borderline personality disorder (BPD). Peer-led groups have been shown to positively impact outcomes related to empowerment, hope, and self-efficacy beliefs for consumers diagnosed with serious mental illness and may also be a helpful option for those experiencing personality disorder symptoms. We outline the coproduction of a peer group for people with a lived experience of BPD and a qualitative analysis of feedback post-group participation.

Vojtila, L., Ashfaq, I., Ampofo, A., Dawson, D., & Selby, P. 
Engaging a person with lived experience of mental illness in a collaborative care model feasibility study. 
Research Involvement and Engagement
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Researchers have explored different types of treatment to help people with a mental illness with other problems they might be experiencing, such as their health condition and quality of life. Care models that involve many different health care providers working together to provide complete physical and mental health care are becoming popular.

Berzins, K., Louch, G., Brown, M., O’Hara, J. K., & Baker, J. 
Service user and carer involvement in mental health care safety: raising concerns and improving the safety of services. 
BMC Health Services Research
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Background: Previous research into improving patient safety has emphasised the importance of responding to and learning from concerns raised by service users and carers. Expertise gained by the experiences of service users and their carers has also been seen as a potential resource to improve patient safety. We know little about the ease of raising concerns within mental health services, and the potential benefits of involving service users and carers in safety interventions. This study aimed to explore service user and carer perceptions of raising safety concerns, and service user, carer and health professional views on the potential for service user and carer involvement in safety interventions.

Brooks, H., Harris, K., Bee, P., Lovell, K., Rogers, A., & Drake, R. 
Exploring the potential implementation of a tool to enhance shared decision making (SDM) in mental health services in the United Kingdom: a qualitative exploration of the views of service users, carers and professionals. 
International Journal of Mental Health Systems
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Background: As a response to evidence that mental health service users and carers expect greater involvement in decisions about antipsychotic medication choice and prescribing, shared decision-making (SDM) has increasingly come to be viewed as an essential element of person-centred care and practice. However, this aspiration has yet to be realised in practice, as service users and carers continue to feel alienated from healthcare services. Existing understanding of the factors affecting the use of tools to support SDM is limited to inter-individual influences and wider factors affecting potential implementation are underexplored.

Lovell, K., Bee, P., Bower, P., Brooks, H., Cahoon, P., Callaghan, P., Carter, L.-A., Cree, L., Davies, L., Drake, R., Fraser, C., Gibbons, C., Grundy, A., Hinsliff-Smith, K., Meade, O., Roberts, C., Rogers, A., Rushton, K., Sanders, C., & Shields, G. 
Training to enhance user and carer involvement in mental health-care planning: the EQUIP research programme including a cluster RCT. 
Programme Grants for Applied Research
7(9), 1–140. 
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Background: Service users and carers using mental health services want more involvement in their care and the aim of this research programme was to enhance service user and carer involvement in care planning in mental health services.

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“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

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