Accessibility Tools

Lived Experience Research

— Case studies / Surveys

Documented case studies research.

Kang, K. I., & Joung, J. 
Outcomes of consumer involvement in mental health nursing education: An integrative review. 
International Journal of Environmental Research and Public Health
17(18), 6756. 
Full Text


This integrative review analyzed the research on consumer involvement in mental health nursing education in the last decade. We aimed to derive the main contents, methods, and outcomes of education using consumer involvement for mental health nursing students. We searched six electronic databases using English and Korean search terms; two authors independently reviewed the 14 studies that met the selection criteria.

von Peter, S., & Bos, G. F. 
the necessity of unsettling encounters in collaborative research – reflections of two researchers without experiential expertise. 
von Peter, S., & Bos, G. F. (2022). The necessity of unsettling encounters in collaborative research – reflections of two researchers without experiential expertise. Collaborations: A Journal of Community-Based Research and Practice
Full Text


Background: Maintaining collaborative research relations is challenging, as shown by a range of personal accounts of researchers with experiential expertise, emerging from reflected lived experiences within medical or social care institutions.

Scholz, B., Platania‐Phung, C., Gordon, S., Ellis, P., Roper, C., Bocking, J., & Happell, B. 
Very useful, but do carefully: Mental health researcher views on establishing a Mental Health Expert Consumer Researcher Group. 
Journal of Psychiatric and Mental Health Nursing
26(9-10), 358–367. 
Membership, Subscription or Payment


Introduction: Contemporary mental health policy identifies consumers as active participants in all aspects of mental health services from design to evaluation. Consumer researchers should be actively involved in mental health research and contribute to quality service delivery.

Morse, A. R., Forbes, O., Jones, B. A., Gulliver, A., & Banfield, M. 
Australian mental health consumer and carer perspectives on ethics in adult mental health research. 
Journal of Empirical Research on Human Research Ethics
14(3), 234–242. 
Full Text


Barriers to research arise when national ethical guidelines governing the inclusion of consumers in mental health research are implemented at the local level. Equivalent guidelines for research involving carers are not available.

King, C., & Gillard, S. 
Bringing together coproduction and community participatory research approaches: Using first person reflective narrative to explore coproduction and community involvement in mental health research. 
Health Expectations
22(4), 701–708. 
Full Text


Background: A growing literature explores the coproduction of research knowledge. Barriers to coproduction in mental health research have been identified, especially for the people from marginalized communities. There is an established body of participatory research that has potential to inform coproduction in mental health research.

Project Partners

Mental Health Lived Experience Engagement Network Logo

National Mental Health Consumer & Carer Forum logo

Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


Aboriginal flag
Torres Strait Islander flag
© Lived Experience Digital Library. All rights reserved.