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Lived Experience Research

— Lived Experience Research Initiatives

Innovative actions and or enterprises that support participatory research.

ACACIA: The ACT Consumer and Carer Mental Health Research Unit. 
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ACACIA is the ACT’s Consumer and Carer Mental Health Research Unit. We were established in 2013 with funding from ACT Health. We aim to undertake research which is relevant to and benefits the lives of mental health consumers and carers in the ACT. All of our research is conducted in partnership with consumers and carers. Our staff members and students are mental health consumers or carers with academic expertise and qualifications.

The ALIVE National Centre for Mental Health Research Translation 
The ALIVE National Centre for Mental Health Research Translation. 
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The centre is a collective effort that harnesses the creative potential and research excellence of individuals, universities, primary and community care organisations to improve experiences of care and address life expectancy gaps of priority populations. We bring research, implementation and translation together.

Deakin University 
Deakin to lead new national network in mental health research. 
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A new national collaboration to transform the way mental health treatment is developed and tested will be led by Deakin University and key partners, with $12 million support from the Federal Government's Medical Research Future Fund (MRFF).

Project Partners
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Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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