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Engagement and Participation

— Foundational / Seminal Work

Innovative and influential work that has gone before.

National Mental Health Consumer and Carer Forum 
Consumer and Carer Participation Policy: A framework for the mental health sector. 
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In 2004, the National Consumer and Carer Forum (NCCF) developed this document as a guide for all organisations involved with mental health within the public, private and non-government sectors, to utilise in the development and/or implementation of consumer and carer participation policies. This Policy aims to cover all levels of participation, and includes consumer and carer input at individual, local, state, and national levels.

Gee, A., McGarty, C., & Banfield, M. 
Barriers to genuine consumer and carer participation from the perspectives of Australian systemic mental health advocates. 
Journal of Mental Health
25(3), 231–237. 
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Background: Consumer and carer participation in mental health service development and evaluation has widespread nominal support. However, genuine and consistent participation remains elusive due to systemic barriers.

Aims: This paper explores barriers to reform for mental health services from the perspectives of consumers and carers actively engaged in advocating for improvements in the mental health system.

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Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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