Accessibility Tools

Engagement and Participation

— Engagement and Participation of Children and Young People

Viksveen, P., Bjønness, S. E., Berg, S. H., Cardenas, N. E., Game, J. R., Aase, K., & Storm, M. 
User involvement in adolescents’ mental healthcare: protocol for a systematic review. 
BMJ Open
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Introduction: User involvement has become a growing importance in healthcare. The United Nations state that adolescents have a right to be heard, and user involvement in healthcare is a legal right in many countries. Some research provides an insight into the field of user involvement in somatic and mental healthcare for adults, but little is known about user involvement in adolescents’ mental healthcare, and no overview of the existing research evidence exists.

Young people as partners: How to partner with young people. 
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  • Young people as partners
  • Youth Partnerships in Research
  • Youth Peer Workforce
  • Work Experience and Internships
  • Resources
  • Youth Participation Leaders

Langer, D. A., & Jensen-Doss, A. 
Shared decision-making in youth mental health care: Using the evidence to plan treatments collaboratively. 
Journal of Clinical Child & Adolescent Psychology
47(5), 821–831. 
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The shared decision-making (SDM) model is one in which providers and consumers of health care come together as collaborators in determining the course of care. The model is especially relevant to youth mental health care, when planning a treatment frequently entails coordinating both youth and parent perspectives, preferences, and goals.

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Young people are often left out of decision-making processes that directly impact their lives. The mental health space is no exception. In order to effectively address mental health issues for young people, it is vital that youth voices are brought to the table in meaningful, constructive, and sustainable ways. While engaging youth stakeholders offers a unique set of challenges, there are some guiding principles that have been proven successful in pursuing youth engagement work.

Health Consumers Queensland 
Amplifying the youth voice: Health consumers Queensland youth engagement framework 2021. 
Brisbane: Health Consumers Queensland
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Young health consumers have a significant role to play in shaping health services and influencing system change. As the entire world grapples with the implications of the COVID-19 global pandemic, safe, affordable, timely and accessible services that are shaped and influenced by ALL consumers have never been more important.

Project Partners

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Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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