Accessibility Tools

Lived Experience Leadership

— Tools, Guidelines & Frameworks

What should be done and how it can be done.

Royal Commission into Victoria's Mental Health System 
The leadership of people with lived experience of mental illness or psychological distress. 
Melbourne: Royal Commission into Victoria's Mental Health System Final Report
chapter 18, volume 3, 9-46. 
Full Text


The Royal Commission recognises the strength of people living with mental illness or psychological distress, families, carers and supporters, and members of the workforce who have contributed their personal stories and perspectives to this inquiry. This Chapter makes recommendations to promote the leadership of people with Lived Experience of mental health issues.

McGregor, C., & Byrne, L. 
Lived experience leadership roundtable. 
Productivity Commission Inquiry into Mental Health Post Draft Submission
Full Text


Brisbane based peer-operated service, Brook Recovery Empowerment Development Centre (Brook RED) and Brisbane North PHN jointly established the Lived Experience Leadership Roundtable (the Roundtable) as a forum for Lived Experience workers to problem solve the systemic challenges commonly experienced by the Lived Experience workforce across Queensland. Roundtable members include Lived Experience workers from across the state, working in diverse roles and in a variety of service settings.

Hodges, E., Loughhead, M., McIntyre, H, & Procter, N.G. 
The model of lived experience leadership. 
Adelaide: Lived Experience Leadership and Advocacy Network of SA and University of South Australia
Full Text


The model of lived experience leadership was developed to guide thinking on lived experience leadership and assist reflective learning and growth opportunities for emerging and established leaders. We encourage mental health and social sector leaders to engage with the model to understand the positioning and value of lived experience in their setting and broader system transformation.

Project Partners

Mental Health Lived Experience Engagement Network Logo

National Mental Health Consumer & Carer Forum logo

Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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