Accessibility Tools

Co-design and Co-production

— Co-design / Co-production with LGBTIQ+ Communities

Martin, J., Butler, M., Muldowney, A. & Aleksandrs, G. 
(2020). 
Using Integrated Experience-Based Co-Design to Promote Mental Health Service Design Improvements with Informal/Family Carers of Adults from LGBTQ Communities. 
Sage Research Methods Cases: Medicine and Health
SAGE Publications, Ltd. 
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Abstract

Co-design research and evaluation methodologies are being increasingly adopted as a preferred approach for mental health research. However, research on the effectiveness and impacts of co-design involving carers is scarce. This article discusses how to conduct research using an integrated experience-based co-design method. It includes issues considered during the formation of the research team and during the study design and implementation.


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About

Meridian engaged Collective Action to lead a co-design process to design a mental health service for LGBTIQA+ people in the ACT. The co-design process involved a series of co-design workshops with an LGBTIQA+ service user reference group, as well as with mental health practitioners, and a survey of the LGBTIQA+ community. We received excellent feedback from the service user reference group who expressed that it was a genuine co-design process that gave service users the power to design a service that meets their needs. We also received positive feedback from the funding body, and Meridian was funded to implement the model.


Lucassen, Mathijs F. G., Samra, Rajvinder Samra, .Rimes, Katharine A., Brown, Katherine E., & Wallace, Louise M. 
(2022). 
Promoting resilience and well-being through co-design (The PRIDE Project): Protocol for the development and preliminary evaluation of a prototype resilience-based intervention for sexual and gender minority youth. 
JMIR Research Protocols
11(2): e31036. 
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Abstract

Background: Sexual and gender minority youth (SGMY) are at an increased risk of a range of mental health problems. However, few evidence-informed interventions have been developed specifically to support their mental well-being. Interventions that are evidence-informed for the general population and are fine-tuned specifically with SGMY in mind proffer considerable potential. A particular opportunity lies in the delivery of engaging interventions on the web, where the focus is on enhancing the coping skills and building the resilience of SGMY, in a way that is directly relevant to their experiences. On the basis of earlier work related to an intervention called Rainbow SPARX (Smart, Positive, Active, Realistic, X-factor thoughts), we seek to create a new resource, especially for SGMY in the United Kingdom.

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The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.

 

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