What should be done and how it can be done.
This resource was commissioned by NHS England to support delivery of the Five Year Forward View for Mental Health and the NHS Long Term Plan. This document aims to improve local strategic decisions about, and the provision of, current and future mental health services for children, young people, adults and older adults.
This includes people who are not in contact with mental health services, because of existing barriers to access or for other reasons. This document also talks about co-production with people who are in at-risk populations.
Regarding the 65 recommendations from the Royal Commission into Victoria’s Mental Health System, nearly a third of them explicitly call for co-design (or co-production) between professionals and people with lived experience of mental illness. But doing it authentically is a big task – and it will take leaders modeling power sharing, building capability, and letting communities go at their own pace to make it a reality.
The WHO Global Strategy in integrated people-centred health services 2016–2026 calls for a shift in the way health services are funded, managed, and delivered. This strategy highlights the people-centred approach as crucial to the development of health systems that respond to current health challenges, including ageing populations, multi-morbidities, and rising healthcare costs.
In this sense, people-centred care has been defined as the process of treating the patient as a unique individual. It respects patients and service users as individuals and considers their opinions in decision-making. Consequently, a people-centred approach empowers patients by increasing their role in their own health, giving them information, and providing support, comfort, acceptance, legitimacy, and confidence. According to the WHO1 strategy for 2016–2026, the implementation of people-centred care requires strategies that respond to local conditions and contexts, with the participation of local stakeholders and, specially, of disadvantaged populations.
The communities we interact with every day are the very reason we exist as an organisation. Finding ways to collaborate with these communities is key to Mind’s 2021-2026 organisational strategy. This is reflected in the intent to invest in service design and innovation to deliver better services and outcomes and to do this by leveraging our peer workforce and embedding co-design and client and carer participation in our operating model so that lived experience drives our service design and delivery, research and advocacy.
We know that when we involve people with diverse perspectives in problem solving, we uncover ideas and insights that might have otherwise been overlooked by researchers and practitioners alone. For this reason, co-design has been widely heralded as a way to embrace ‘whole-of-systems-thinking’ and a method to solve complex problems. This practice framework presents Mind’s position and understanding of participation and co-design. Alongside the history and context, this framework steps through what we can do to create the conditions for successful collaboration with the Mind community. It provides Mind practitioners with case studies and examples of this work and highlights the resources and tools they have available for participation and co-design to be embedded as everyday practice. True co-design and co-production is ambitious, but certainly achievable. While there is no precise checklist or explicit ‘how to’ guideline on how to facilitate co-design initiatives, this practice framework will offer a template of ideas, opportunities and considerations to empower Mind employees to authentically engage communities in decision-making with confidence. This practice framework is an example of participation and co-design itself. It is influenced by innovative and leading work from within Australia and internationally, however most of the content has been developed with direct input from Mind’s Lived Experience Advisory Team and practitioners across the organisation. Included in the framework is a position statement: Working together to make a difference which was entirely led and designed by people who have been involved in co-design at Mind to share some key success criteria with practitioners.
The purpose of this framework is to support strategic leads, commissioners and managers responsible for mental health, to consider and bring about the cultural and behavioural changes that are required, in order for co-production to become the ‘norm’, in the design, commissioning and delivery of mental health services and supports.
This framework forms part of a set of resources aimed at different audiences, including
The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.
“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.
“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre
We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.
We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.