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Ideas of and issues in co-design and co-production including overcoming barriers.
Little is known about how co-creation and co-production is understood, implemented, and sustained within health and social care in Scotland. Given the normative centrality of co-production and co-creation for improving public services, it is timely to investigate the extent to which these approaches are understood, operationalised and sustained as part of the integration of health and social care based on the occupational experiences of those tasked with leading and undertaking integration.
An Audit Scotland (2018) report and the Ministerial Steering Group (MSG) report (2019) (Scottish Government, 2019) both called for quicker progress to be made on integration and strongly encouraged innovative approaches for going so (such as adopting co-productive approaches). In this light, the research also links to the broader theme of public sector governance and reform in Scotland (i.e. how the approaches to public sector reform present barriers or facilitators to the adoption and sustainability of co-production and co-creation) based on the perspectives of those leading integration in health and social care in health and social care areas and within relevant national agencies.
Inpatient services are frequently constructed as a topic of concern in research and policy, often in response to service-users’ reports that wards are unsafe, boring, and lacking in amenities. Our research shows that service-users, as well as staff and families, experience inpatient mental health spaces as impermeable, separate and stigmatising, and sometimes uncomfortable, chaotic and unsafe. Experience-based co-design is a participatory action research approach to service development, which has been used extensively in physical healthcare, but is only recently being used to improve mental health services.
This chapter will draw on EBCD projects from two NHS Mental Health Trusts. These projects brought together service-users, staff and families, alongside Trust management and community staff to co-design improvements to the inpatient wards. Sometimes these improvements were as simple as introducing soft furnishings and better signage, sometimes they were more complex interventions in the culture of the wards, however all the improvements, and perhaps more importantly, the improvement process, allowed service-users and families to feel more welcomed and comforted, and helped staff working in difficult circumstances feel more supported.
The role and position of users in health and welfare has recently changed to become more active in co-production of care. When more co-production is preferred, challenges related to power need to be considered. In this paper, power is seen as the possibility to influence. The paper focuses on power in co-produced improvement work by introducing a reflection model based on Franzén’s power triangle, further developed from improvement coaches’ perceptions.
First, empirical data from interviews with improvement coaches were analyzed and then the theoretical model was created. Twelve coaches were included in the interviews, all of them with experience of co-production and improvement work within a region in southeast Sweden. By combining the empirical results with the power triangle, a reflection model concerning power dimensions was developed. The results showed the necessity of reflection regarding several power-related factors. Resources were found to be important and depending on contextual settings. Attitudes and perceptions among personnel and users were also vital. To accomplish co-production, the power dimension must be considered, and the power triangle acknowledges different power dimensions and how they affect each other. The model has a systematic character and allows adjustments to the power dimensions within any other context. It can inspire and be used by improvers working with co-production to promote deeper professional and organizational reflection and thereby contribute to new insights on how to balance power in co-producing health and welfare services.
The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.
“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.
“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre
We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.
We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.