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Lived Experience Research

— Involvement of First Nations People in Research

The Seedling Group and The Lived Experience Centre 
(2020). 
"We are Strong. We are Resilient. But we are Tired": Voices from the Aboriginal and Torres Strait Islander Lived Experience Centre Yarning Circles Report. 
Black Dog Institute
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Introduction

Yarning with those who have a Lived Experience of a suicide crisis tells us so much. We can begin to understand what was happening in the lives of those who have contemplated suicide or died by suicide. There are clear learnings of what was happening emotionally at the crisis moment, what was happening in people’s lives leading up to that point and also what slow-burning factors were stressors long before the crisis point.


Milroy, H., Kashyap, S., Collova, J., Mitchell, M., Derry, K. L., Alexi, J., Chang, E. P., Dudgeon, P. 
(2022). 
Co-designing research with Aboriginal and Torres Strait Islander consumers of mental health services, mental health workers, elders and cultural healers. 
Australian Journal of Rural Health
30(6), 772-781. 
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Introduction

The disparity in mental health outcomes compared with non-Indigenous Australians means that there is an urgent need to develop an evidence base around how services can better support Aboriginal and Torres Strait Islander communities. A critical first step is to embed cultural safety into research methodologies.


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About

The Aboriginal and Islander Mental health initiative (AIMhi) at Menzies works with Aboriginal and Torres Strait Islander researchers, practitioners, organisations and communities to build resilience and address healing through strengths-based approaches to wellbeing and mental health promotion and treatment.


N/A 
(n.d.). 
The Transforming Indigenous Mental Health and Wellbeing Research Program. 
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About

Our partners represent an ongoing collaborative of Aboriginal leaders and organisations, who are dedicated to creating long-term impact by bringing together their skills across community, academia, professional services, and national policy. The active and ongoing involvement of our dedicated Aboriginal-led collaborative ensures the research is designed, implemented and translated with cultural values and integrity in best responding to the needs of our communities.


National Health and Medical Research Council 
(2018). 
Keeping research on track II: a companion document to ethical conduct in research with Aboriginal and Torres Strait Islander Peoples and communities: guidelines for researchers and stakeholders. 
Canberra: NHMRC
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Summary

Over the years research has been undertaken into all aspects of Aboriginal and Torres Strait Islander people’s lives. While some research has been beneficial in areas such as health, medicine, education and science, not all research has been of benefit. It is therefore important that appropriate processes are in place to ensure that research is considered, meaningful, ethical and beneficial to Aboriginal and Torres Strait Islander people and communities.

Project Partners

Mental Health Lived Experience Engagement Network Logo

National Mental Health Consumer & Carer Forum logo

Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.

 

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