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Lived Experience Leadership

— Discussion and Analysis

Ideas of and issues in Lived Experience leadership including overcoming barriers.

Beresford, P. 
“Mad”, Mad Studies and advancing inclusive resistance. 
Disability & Society
35(8), 1–6. 
Full Text


‘Mad’ is a contentious term with which many service users/survivors feel uncomfortable. Yet it is the framework for a major new user-led challenge to bio-medical thinking about distress – Mad Studies – which is coming in for criticism for this and other identified shortcomings. Why has it adopted this controversial, conflict-ridden title? This article will explore current criticisms and raise the question of what Mad Studies’ strategy should be to address them for the future?

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The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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