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Lived Experience Leadership

— Discussion and Analysis

Ideas of and issues in Lived Experience leadership including overcoming barriers.

McAdam, M. 
Making my voice heard as an expert by experience. 
Centre for Mental Health UK Blogs
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Marsha McAdam shares how she has found purpose through challenging the stigma of personality disorder and driving change in mental health services.

Katterl, S. 
Nothing in our mental health system makes sense, except in light of lived experience. 
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Simon Katterl works in advocacy at the Victorian Mental Illness Awareness Council and Independent Mental Health Advocacy.

Jones, N. 
Lived experience leadership in peer support research as the new normal. 
Psychiatric Services
73(2), 125. 
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In this issue, Dana Foglesong and colleagues headline a new Lived Experience Inclusion and Leadership column in Psychiatric Services. The column is the first peer-reviewed publication on peer support in the journal, led and co-authored in its entirety by lived experience leaders within the peer support movement, most of whom have also worked as peer specialists.

Jackman. M. (Host) 
Global lived experience leadership. 
Mental Health and Suicide Prevention Research and Education University of South Australia
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In Episode 13, Mark Jackman talks with Matthew, who is a lived experience leader, academic and global activist. Matthew shares on his engagement with global mental health forums and how lived experience connects with social theory, social justice perspectives and social work. 

Hodges, E., & Reid, A. 
Enabling lived experience involvement and leadership to thrive and have impact. 
34(6), 33–36. 
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The lived experience community is calling for improved involvement opportunities and increased leadership pathways across the mental health and social services sector. Lived experience involvement in service design, delivery, decision-making, research, evaluation and system reform are key principles in both state and Federal mental health policies and are embedded throughout the United Nations Convention for the Rights of People with Disabilities.

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Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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