Ideas of and issues in Lived Experience leadership including overcoming barriers.
Marsha McAdam shares how she has found purpose through challenging the stigma of personality disorder and driving change in mental health services.
Simon Katterl works in advocacy at the Victorian Mental Illness Awareness Council and Independent Mental Health Advocacy.
He had a senior role at the Mental Health Complaints Commissioner, and worked with consumers across Victoria to co-produce a suite of self-advocacy resources, before I took a policy role at the Victorian Equal Opportunity and Human Rights Commission. In 2020, he assisted 34 consumers to give evidence to the Royal Commission into Victoria’s Mental Health System at Victoria Legal Aid through their own personal stories. Since then he has provided individual consultancy to the Royal Commission, while also undertaking his own writing and providing training and support to fellow consumer workers. Underpinning all of this work is an understanding that consumer leadership and co-design are critical to service transformation, and that a functioning system will be one that respects human rights.
In this issue, Dana Foglesong and colleagues headline a new Lived Experience Inclusion and Leadership column in Psychiatric Services. The column is the first peer-reviewed publication on peer support in the journal, led and co-authored in its entirety by lived experience leaders within the peer support movement, most of whom have also worked as peer specialists.
Although lived experience–led research is not the exclusive remit of the Lived Experience column, this is the sort of work we (the column editors) are most excited to see. It is scholarship that represents a tangible democratization of knowledge production that contributes to rebalancing epistemic disparities stemming from historical failures to fully and equitably include those whom psychiatric services are designed to serve.
In Episode 13, Mark Jackman talks with Matthew, who is a lived experience leader, academic and global activist. Matthew shares on his engagement with global mental health forums and how lived experience connects with social theory, social justice perspectives and social work.
The lived experience community is calling for improved involvement opportunities and increased leadership pathways across the mental health and social services sector. Lived experience involvement in service design, delivery, decision-making, research, evaluation and system reform are key principles in both state and Federal mental health policies and are embedded throughout the United Nations Convention for the Rights of People with Disabilities.
The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.
“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.
“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre
We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.
We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.