Accessibility Tools

Engagement and Participation

— Discussion and Analysis

Ideas of and issues in engagement and participation including overcoming barriers.

Jones, N. 
(2019). 
Rethinking consumer empowerment (and systems change) through the lessons of self-directed care. 
Psychiatric Services
70(3), 165–165. 
Full Text

Summary

In an important and provocative study reported in this issue of Psychiatric Services, Cook and colleagues detail findings stemming from a rigorous and well-powered investigation of self-directed care for adults with serious mental illness living in Texas. The investigators found significant improvements in multiple key domains, including recovery, self-esteem, coping, autonomy support, and employment and education, all at no additional cost.


Health Talk Australia 
(2022). 
Mental health and supported decision making: Lived experience perspectives. 
Full Text

About

This website is an outcome of the ARC Linkage Project Options for Supported Decision-Making to Enhance the Recovery of People with Severe Mental Health Problems (SDM) project.

Here, you can find out about what it is like to experience severe mental health problems by seeing and hearing people’s stories on film and audio-recording.


Haydon, R. (Host) 
(2021). 
Carers’ experience and reactions to the Royal Commission (No. 42). 
Get Real: Talking mental health & disability
Full Text

Summary

We’re continuing our conversations about the findings of the Royal Commission into Victoria’s Mental Health System. These findings will reshape mental health services, not just in Victoria but potentially across Australia.


Happell, B., Waks, S., Horgan, A., Greaney, S., Manning, F., Goodwin, J., Bocking, J., Scholz, B., Hals, E., Granerud, A., Doody, R., Platania‐Phung, C., Griffin, M., Russell, S., MacGabhann, L., Pulli, J., Vatula, A., Browne, G., Vaart, K. J., & Allon, J. 
(2020). 
“It is much more real when it comes from them”: The role of experts by experience in the integration of mental health nursing theory and practice. 
Perspectives in Psychiatric Care
56(4), 811-819. 
Full Text

Abstract

Purpose: To examine nursing students’ perceptions of Experts by Experience impact on theoretical and practical learning.


Fox, J. 
(2021). 
Shared Decision-Making: An autoethnography about service user perspectives in making choices about mental health care and treatment. 
Frontiers in Psychiatry
12. 
Full Text

Abstract

Shared decision-making (SDM) between mental health medication prescribers and service users is a central pillar in the recovery approach, because it supports people experiencing mental ill-health to explore their care and treatment options to promote their well-being and to enable clinicians to gain knowledge of the choices the service user prefers.

Project Partners

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Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.

 

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