Accessibility Tools

Engagement and Participation

— Discussion and Analysis

Ideas of and issues in engagement and participation including overcoming barriers.

Dixon, L., & Berezin, J. (Hosts) 
(2021). 
Deepening engagement of service user participation within research and the mental health system. 
Pages to Practice
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Summary

Marie Brown, Ph.D., and Nev Jones, Ph.D., join Dr. Dixon and Dr. Berezin to discuss steps to build a pipeline of researchers with significant psychiatric disabilities and intersecting lived experiences and to increase service user participation in the U.S. mental health care system.


Daya, I., Hamilton, B., & Roper, C. 
(2019). 
Authentic engagement: A conceptual model for welcoming diverse and challenging consumer and survivor views in mental health research, policy, and practice. 
International Journal of Mental Health Nursing
29(2), 299–311. 
Full Text

Abstract

As involvement of consumers/survivors in planning, delivery, and evaluation of services has increased, expectations of authentic and effective engagement, versus tokenism, have also risen. Different factors contribute to, or detract from, authentic engagement. Writing from mental health consumer/survivor and nursing positioning, respectively, we aim to redress the common problem of including only a narrow range of views and voices.


Davis, K., Balasuriya, L., & Dixon, L. B. 
(2022). 
Engaging people with lived experience in mental health services and research. 
Psychiatric Services
73(4), 476–477. 
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About

The Psychiatric Services Editor’s Choice provides essential curated collections from recent issues of Psychiatric Services.  Each month, Editor Lisa Dixon and the Early Career Psychiatrist Advisory Committee offer a curated collection from the rich resource of articles published in the journal. Updates will focus on one area, summarizing for the researcher, clinician, and policy analyst the latest information and seminal research with links to specific content from Psychiatric Services.


Byrne, L. 
(2017). 
Promoting lived experience perspective: Discussion paper prepared for the Queensland Mental Health Commission. 
Full Text

Summary

This paper has been developed to prompt thinking and discussion on ways to promote lived experience participation in Queensland’s mental health sector.


Brown, M., & Jones, N. 
(2021). 
Service user participation within the mental health system: Deepening engagement. 
Psychiatric Services
72(8), 963-965. 
Full Text

Summary

Over the past decade, there has been a marked uptick in interest in increasing service user participation in the U.S. mental health care system, including clinical practice, research, and policy. Too often, however, these efforts remain superficial and unlikely to bring about the deeper transformation of systems long called for by grassroots activists.

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Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.

 

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