Accessibility Tools
Ideas of and issues in engagement and participation including overcoming barriers.
The experience and perspective of primary carers is a key part of best practice mental health care. In this episode, Rhonda and Jane share their views on carer inclusion and how consumers, carers and clinicians can develop effective partnerships in care.
Mental health issues are a severe global concern with significant personal, social, and economic consequences and costs. This paper reports results of an online survey disseminated across the Australian community investigating why people with mental health issues choose particular mental health services over others, what causes them to disengage from services, and what factors and qualities of services are important to consumers to support their continued engagement or re-engagement with mental health services.
The importance of GPs was evident, given their key role in providing mental healthcare, especially to those referred to as “the missing middle”—consumers with mental health issues who fall through the gaps in care in other parts of the healthcare system. The study found that many respondents chose to engage with mental healthcare providers primarily due to accessibility and affordability, but also because of the relational qualities that they displayed as part of delivering care. These qualities fostered consumers’ sense of trust, feeling listened to, and not being stigmatized as part of help seeking and having their mental health needs met. Implications for education and practice are offered.
In a Position Paper published in The Lancet Psychiatry, Carmen Moreno and colleagues recommended bolder language and framing with respect to the meaningful involvement of service users in mental health planning, policy, and research in the wake of COVID-19. It is always gratifying to hear enthusiasm for goals the user and survivor research movement has long fought for.
We were similarly gratified to read an Editorial in The Lancet Psychiatry arguing for pressure from service users to more actively shift societal discourse. And yet, as welcome as these statements are, we worry that the primary problem we are all up against is not a paucity of articulated support for service-user involvement but rather the gap between rhetoric and reality.
Contemporary literature on participation indicates that Australian Federal and State governments and mental health consumers and carers, expect mental health services to improve participation practices. This study sought to fill a research gap by exploring the perspectives of Queensland public sector executive level mental health managers with responsibility for implementing national participation standards.
Drawing on theoretical ideas of participation, recovery and social citizenship, the study aim and objective was to identify and analyse the knowledge, attitudes, and practices of mental health managers in relation to consumer and carer participation. A qualitative research design using an interpretative approach was applied. The researcher adopted an insider/outsider/in-betweener researcher position based on her lived experience as a carer, a social work mental health advocate and a manager in a public mental health service. Twenty-three executive level mental health managers across nine public mental health services were interviewed. The study findings showed that numerous participation challenges exist for mental health managers including, working within a neo-liberal context of cost efficiency and effectiveness, competing work priorities, staff negative attitudes towards participation, tensions among stakeholders with different ideas about participation and, managing a growing consumer and carer workforce. Despite these challenges, managers in this study were committed to participation. Managers considered that growth in the consumer and carer workforce was evidence of national participation standards being met but that participation is a complex space that is ‘easier said than done’. Findings highlighted the need to strengthen participation through building human connections and relationships among consumers, carers, and mental health professionals and, by fostering mutual respect for lived experience and professional expertise. Findings also highlighted the need to increase support for the consumer and carer workforce and, that while the emphasis has been on growing consumer participation, there is a need to foster and grow family and carer participation.
Historically, the mental health system, and the conversation surrounding it, has given more value to the expert opinions of providers and clinicians than the experiences of those living with mental health conditions. Today, elevating the visibility of the latter has become an urgent priority of mental health organizations, institutions, and leaders who recognize the many advantages of giving mental health services consumers more autonomy and authority in the mental health space.
About a decade ago, the Hogg Foundation hired its first two consumer and family liaisons, Stephany Bryan and Tammy Heinz. As program officers, their passion and perspective has proved invaluable to making the foundation bolder and more inclusive in its grant making strategy. To celebrate their ten-year anniversary with the foundation, this episode of our Into the Fold podcast explores the consumer movement from the ground up—with Bryan and Heinz as our guides.
The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.
“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.
“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre
We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.
We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.