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Lived Experience Leadership

— Discussion and Analysis

Ideas of and issues in Lived Experience leadership including overcoming barriers.

Recovery Mental Health 
Mad Pride - breaking the silence. 
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Participants in Toronto’s 2017 Mad Pride celebrations talk about the need to break the silence around mental illness.

Procknow, G., & Rocco, T. S. 
Contesting “authenticity” in authentic leadership through a Mad Studies lens. 
Human Resource Development Review
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A Mad Studies/social model of mental distress lens was used to critique authentic leadership. We deconstructed the dilemma of authenticity and leadership by exploring how authentic leadership (dis)allows the inclusion of people with mental illness. We found that their minds are treated as disruptive and rarely ever read as authentic.

Piat, M., Sabetti, J., & Padgett, D. 
Emergent leadership among tenants with psychiatric disabilities living in supported housing. 
International Journal of Mental Health Nursing
27(3), 1127–1136. 
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The overall aim of this study was to explore the experiences of people with psychiatric disabilities living as tenants in independent, supported apartments for the first time. Supported housing provides an alternative to structured, custodial housing models, such as foster homes, or board-and-care homes, for clients in public mental health systems. This article reports findings on how leadership emerged among tenants after making the transition from custodial to supported housing.

The Mental Health Commission of NSW 
Hope strength and determination: Celebrating 50 years of women activists and reformers in mental health in NSW 1970–2020. 
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This book on women in mental health reform has been produced to recognise and honour the contributions of many women and to show through their brief biographies the ebb and flow of reform and change which has created the still fragile service system in NSW.

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The Manifesto proclaims “We are the owners of our life and our history.” Mad Pride is a movement of the users of mental health services, former users, and the aligned. It was formed in 1993 in response to local community prejudices towards people with a psychiatric history living in boarding homes in the Parkdale area of Toronto, Ontario, Canada, where a Mad Pride event has been subsequently held almost every year since.

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Mental Health Lived Experience Engagement Network (MHLEEN) logo
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Acknowledgement of Country

The National Mental Health Consumer and Carer Forum and the National Primary Health Network Mental Health Lived Experience Engagement Network acknowledge the Traditional Custodians of the lands and waters on which we work and live on across Australia. We recognise their continuing connection to land, waters, culture and community. We pay our respects to Elders past and present.

Definition of Aboriginal and Torres Strait Islander Lived Experience

“A lived experience recognises the effects of ongoing negative historical impacts and or specific events on the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. It encompasses the cultural, spiritual, physical, emotional and mental wellbeing of the individual, family or community.

“People with lived or living experience of suicide are those who have experienced suicidal thoughts, survived a suicide attempt, cared for someone through a suicidal crisis, been bereaved by suicide or having a loved one who has died by suicide, acknowledging that this experience is significantly different and takes into consideration Aboriginal and Torres Strait Islander peoples ways of understanding social and emotional wellbeing.” - Aboriginal and Torres Strait Islander Lived Experience Centre

We welcome Aboriginal and Torres Strait Islander people to this site and invite them to provide any feedback or items for inclusion.

Recognition of Lived Experience

We also recognise people with lived and living experience of mental ill-health and recovery and the experience of people who are carers, families, kin, or supporters.


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